Longitudinal Qualitative Research: A Powerful Tool for Patient-centred Research

In the era of patient-centred research and healthcare, clinical researchers are being asked to think beyond hypothesis testing, and to engage in sometimes difficult discussions about the meaningfulness of their trial results.

Regulators, payers, clinicians and patient advocacy groups all want to understand how innovative products and treatments can change the course of disease, and how patients will experience and value these changes. Qualitative longitudinal research is a powerful tool for understanding the importance patients ascribe to the changes they experience. While there are established methods in place for conducting cross-sectional qualitative research, longitudinal qualitative research is a promising and innovative field for which specific methods are not yet well-defined.

Join this webinar for insights on how to design and conduct longitudinal qualitative research. Experts will share knowledge from over six years of successfully designing and conducting longitudinal interviews in clinical trials. The methodological choices in longitudinal qualitative research will be examined from start to finish — from study design, to interview guides, data analysis and reporting.

Webinar attendees will learn:

• The why, when, what and how of qualitative longitudinal research
• The design of baseline and follow-up interview guides
• The different types of qualitative longitudinal analysis
• How to think critically about change over time, including considerations about the quantification of qualitative longitudinal change
• The do’s and don’ts on communicating qualitative longitudinal results

Speakers

Sally Lanar, Senior Outcomes Researcher, PCO, GHEORE

Sally has over six years of experience in patient-centered outcomes. Her expertise is in longitudinal qualitative research, qualitative research embedded in clinical trials, and the use of qualitative analysis software. She has worked on six projects with longitudinal interviews embedded in clinical trials. For each project, she has developed tailored approaches to interview guide development, interview conduct and interview analysis. She has conducted longitudinal interviews herself and led interview teams and analysis teams in this field.

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Alexia Marrel, Lead Outcomes Researcher, PCO, GHEORE

Alexia has over 15 years of experience, with significant expertise in the management of international projects in the field of patient-centered outcomes. At ICON, she is responsible for the direction of PRO projects and proposals, with specialized interest in qualitative research, specifically in patient interviews within clinical trials, also known as mixed methods research. This work covers a wide range of disease areas, including several rare diseases. Alexia has also co-authored a number of manuscripts published in peer-reviewed journals, as well as delivered presentations at international scientific conferences.

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