Patient-Reported Outcomes to Assess Long COVID: A Review of Existing Tools and Benefits

The Coronavirus Disease 2019 (COVID-19) pandemic has had a significant global impact on public health and well-being for over three years. According to the World Health Organization, studies have reported that 10-20 percent of COVID-19 patients will go on to develop long COVID [1]. Research is still ongoing to identify long COVID and gather a deeper understanding of the natural history of this disease, alongside its management and long-term sequelae. However, these efforts will not be complete without capturing patients’ experience and the disease’s impact on their quality of life which can be measured through patient-reported outcomes (PROs).

This webinar aims to further understand long COVID assessments regarding PRO instruments and the concepts that have been researched.

The use of PROs is essential in assessing the impact of long COVID on patient’s quality of life and to facilitate the research and development of treatments. The speakers will discuss the potential need of further research to develop disease-specific PROs for the assessment of long COVID.

Join this webinar to discover how to select fit-for-purpose PRO instruments in any therapeutic indications. Learn why the ePROVIDE^TM platform and clinical outcome assessment databases can become valuable resources for researchers who are preparing clinical trials in long COVID.

1. World Health Organization. “Post COVID-19 condition (Long COVID).” WHO, 7 Dec. 2022.

Speakers

Sara Carvalho, PhD, Lead Outcomes Researcher, Mapi Research Trust

Sara Carvalho manages a team of experts in consultancy in COA strategies at Mapi Research Trust. She has worked in a wide range of therapeutic areas, including oncology, cardiology, infectious and inflammatory diseases. She has authored manuscripts published in scientific peer-reviewed journals as well as presentations for international scientific conferences. Sara holds a PhD in cancer research from The Institute of Cancer Research, a master’s in cellular and molecular biology and a master’s in clinical trials and medical affairs.

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Nadine Kraft, MSc, Team Lead, Database Unit, Mapi Research Trust

Nadine Kraft is the Team Lead of Mapi Research Trust’s Database Unit. Prior to her work at Mapi Research Trust she was complimenting her studies working in an international medical technology company. At the University of Salzburg, she graduated with a MSc in psychology and a specialization in cog. neuroscience and psychological diagnostic, including psychometric properties.

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