See How it’s Done: Case Studies on Patient Experience Design

Life Sciences, Clinical Trials,
  • Wednesday, December 06, 2023

Designing clinical trials around the patient and their experience produces better trials, but what does that really mean, and how is it actually accomplished? How can you be sure you’re collecting data of interest to patient communities? Many common strategies have minimal impact or inadvertently create new challenges for patients. If the trial doesn’t work for patients in their everyday lives, then no recruitment or retention plan can guarantee your study will generate the data you need.

In this webinar, you’ll hear from experts dedicated to creating accessible studies that capture the data sponsors need to move to the next stage in product development. Hear from clinical development professionals who have worked with sponsors across therapeutic areas, phases, and modalities to dig into the details of their protocols, examine their application, and ultimately design trials that work for diverse patients. They’ll be joined by a patient advocate who recently collected extensive patient and researcher community data that will be used to inform clinical development for GLUT1 deficiency syndrome. Together, they’ll dive into real-world examples from their work that you can apply to your program, showing how to de-risk your protocol and truly design your trial with the patient in mind.

In this webinar, you’ll learn how to:

  • Design trials with a patient experience approach
  • Consider data that is important to patient communities
  • Examine a protocol for patient experience optimization
  • Apply real-life examples to your study


Daniel A. Perez, Worldwide Clinical Trials

Daniel A. Perez, CCRP, Global Head of Patient Experience, Diversity & Inclusion, Worldwide Clinical Trials

Daniel A. Perez has worked in healthcare and the pharmaceutical industry for over 14 years, moving through various progressive roles in health administration, clinical operations, strategic business development, and C-Suite executive management. To date, he has led the implementation of over 40 early and late phase clinical trials, overseeing full cycle including protocol development, protocol feasibility, site qualification, site initiation/study start-up, clinical operations, patient recruitment & retention, standard operating procedure & policy writing, and regulatory strategy.

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Juliane K. Mills, Worldwide Clinical Trials

Juliane K. Mills, MS, MPH, Therapeutic Strategy Lead, Rare Disease, Worldwide Clinical Trials

Juliane K. Mills has worked in clinical research for more than 23 years, providing significant scientific and strategic design input as a subject matter expert for Phase I-IV rare disease trials and real-world studies. At Worldwide, Juliane provides operational strategies that are efficient and effective for delivering rare disease trials while being accessible to patients, caregivers, and families. She also leverages her experience supporting product registries, retrospective chart reviews, health economics and outcomes research (HEOR) studies, and compassionate use/expanded access programs. Juliane has held positions on both the sponsor and CRO side of clinical development, providing operational services and developing trial and patient-facing materials in various therapeutic areas.

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Sandra Ojeda, Science Director, Glut1 Deficiency Foundation

Sandra Ojeda holds a BS in Microbiology from Universidad de los Andes in Colombia, a MS in Biochemistry and Molecular Biology from Universitat Autonoma de Barcelona in Spain and a PhD in Microbiology and Immunology from UT Health Science Center in San Antonio. She has worked on cancer research at MD Anderson Cancer Center and more recently, she has taught science at a private school and worked at her daughter’s elementary school. Sandra and her family, husband Juan Manuel and daughter Sofia Mar, have lived in Katy, Texas since 2006. Sofia Mar was diagnosed with Glut1 Deficiency in 2012 at age 3 at Texas Children’s Hospital in Houston.

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Who Should Attend?

This webinar will benefit Vice Presidents, Directors, Managers, Department Heads, Scientists and Researchers working at pharmaceutical and biotechnology companies.

Relevant areas:

  • Clinical affairs
  • Clinical R&D
  • Clinical research
  • Clinical operations
  • Medical affairs
  • Patient advocacy
  • Project management
  • Regulatory affairs
  • Strategic planning

What You Will Learn

In this webinar, you’ll learn how to:

  • Design trials with a patient experience approach
  • Consider data that is important to patient communities
  • Examine a protocol for patient experience optimization
  • Apply real-life examples to your study

Xtalks Partner

Worldwide Clinical Trials

Worldwide Clinical Trials (Worldwide) is a leading global contract research organization (CRO) that works in partnership with biotechnology and pharmaceutical companies to create customized solutions that advance new medications, from discovery to reality. Our full-service clinical development capabilities include bioanalytical laboratory services and Phase I-IV clinical trials, as well as post-approval and real-world evidence studies – all powered by our talented and accessible team of clinicians, scientists, and researchers who bring their first-hand expertise to each clinical program.

At Worldwide, we understand that each customer and project are unique, so we take a collaborative and personalized approach to identify and meet specific needs and goals. Anchored in our company’s scientific heritage, we are therapeutically focused on cardiovascular, metabolic, neuroscience, oncology, and rare diseases. We apply this deep therapeutic knowledge to develop flexible plans and quickly solve problems in the rapidly evolving clinical development landscape.

Our team of 3,000+ professionals spans 60+ countries, and believes that through collaboration, and a culture that embraces diversity, equity, inclusion, and belonging (DEI&B), everyone plays an important role in making a world of difference for patients and their caregivers. We are united in cause with our customers to improve the lives of patients through new, innovative therapies.

For more information, please visit or connect with us on LinkedIn.

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