Patient-Reported Outcomes Assessments: Spotlight on the QOL General (QGEN®) 1-Minute Alternative to SF-36

Life Sciences, Clinical Trials, Laboratory Technology,
  • Wednesday, September 30, 2020

In this webinar, the featured speaker, John Ware, developer of the SF-36, explains how the new 1-minute QGEN survey was developed and evaluated as a more efficient alternative to common SF-36, PROMIS and SF-8 measures, and how it was normed in a US probability sample of adults in 2020. Findings show that, while maintaining equivalent validity and average scores for common domains, QGEN items increase the range of measurement enough to reduce ceiling effects for the dual purposes of monitoring group outcomes and screening for low levels of functional health and well-being.

Click here to access the Mapi Research Trust’s post webinar interview with John Ware.


John E. Ware, Jr., PhD, Chief Science Officer, John Ware Research Group, Research Professor, Department of Medicine, Tufts University School of Medicine & Visiting Professor, College of Health Solutions, Arizona State University

Dr. John E. Ware is an internationally recognized expert in PRO and an elected member of the National Academy of Medicine (formerly Institute of Medicine). He led the development of the outcome measures used in the RAND Health Insurance Experiment, served as the principal investigator for the Medical Outcomes Study and led International Quality of Life Assessment Project translations of the SF-36 for use in multinational clinical trials and population health surveys. He founded Quality Metric to develop web-based PROs and served as its CEO and CSO for 10 years.

Message Presenter

Marie-Pierre Emery, MSc, Senior Project Manager, Author Collaborations Unit, Mapi Research Trust

Marie-Pierre Emery has been working in the field of (PRO) and Clinical Outcome Assessments (COA) within the non-profit Mapi Research Trust for over 25 years. She developed and contributed to the success of all PRO and COA information activities.

Message Presenter

Who Should Attend?

This webinar will appeal to all healthcare professionals, clinical researchers and personnel at pharmaceutical companies interested in patient-reported outcomes and quality of life.

What You Will Learn

By joining this free webinar, attendees will:

  • Observe historical trends in the content and scoring of widely used PRO measures
  • Become familiar with the three approaches used to improving QGEN items and response categories that increased efficiency and reduced ceiling effects
  • Understand how QGEN content and metrics were standardized to enable general population and disease-specific group comparisons with results equivalent to longer legacy measures
  • Become informed regarding practical aspects of QGEN dissemination by Mapi Research Trust for scholarly and commercial purposes

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Mapi Research Trust is the official licensor and distributor of over 400 COAs, on behalf of their developers and copyright owners. Please visit our catalog to access the complete list of COAs managed by Mapi Research Trust, or visit our website for additional information on our services to developers and copyright owners.

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