Bridging Science and Advocacy with Lawreen Asuncion, Life Science Professional and Rare Disease Patient Advocate

In this episode, Ayesha spoke with Lawreen Asuncion, a patient advocate who works to raise awareness for the rare disease Usher syndrome.

Lawreen is a seasoned biotech and life science professional with over 25 years of experience. She began her career as a research scientist, working for more than eight years in this role before transitioning into product management and marketing. Throughout her career, Lawreen has launched over 50 products and worked with various companies, from biotech start-ups to a Fortune 100 company.

Born with hearing loss, Lawreen has worn hearing aids since the age of four. She began volunteering with the Usher Syndrome Coalition in 2020 and was officially diagnosed with Usher syndrome type 2C in 2021. Earlier this year, she expanded her efforts into patient advocacy. Lawreen is dedicated to raising awareness about rare diseases like Usher syndrome, supporting and advocating for the USH patient community, and sharing research progress in the hopes of accelerating the development of more treatment options.

Tune into the episode to hear Lawreen’s perspectives as both a life sciences professional and rare disease patient advocate.

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