Engaging Patient Communities: A Pathway to Clinical Trial Success

Mapillar Dahn, CEO/Founder, MTS Sickle Cell Foundation, Inc.

Inspired by her three daughters who battle sickle cell disease (SCD), Mapillar Dahn founded MTS Sickle Cell Foundation, Inc., a non-profit organization, to bring awareness to SCD and provide support to families affected by SCD. Since its inception in 2015, she has built an engaged online presence of over 60,000 users from all over the world. MTS Sickle Cell Foundation supports patients and families through educational resources, financial assistance and events.

Will Krugman, Director of Marketing & Patient Engagement, Clinical Research Associates, Inc.

Jenifer Ngo Waldrop, Executive Director of the Rare Disease Diversity Coalition, Black Women’s Health Imperative

Jenifer Ngo Waldrop joined the Black Women’s Health Imperative (BWHI) as Executive Director of the Rare Disease Diversity Coalition (RDDC) in October 2022. Jenifer is a values-driven leader who excels in facilitating multi-faceted, respect driven conversations that lead to better connections and mutual understanding. Before joining the leadership team of RDDC, she developed models and programs for diversity, equity, and inclusion (DEI) initiatives to support multiple business units with Fortune 500 companies and organizations in Asia, Canada, and the US. She excels when contributing her skills and abilities to award-winning organizations who have been recognized for their employer value proposition. Jenifer has consulted with hospital systems where she demonstrated impact and influence in driving the integration of DEI methodologies into business best practices and health equity programs.

Leanne Woehlke, Director Life Sciences Solutions, TransPerfect Life Sciences

Leanne Woehlke is a Director of Life Sciences Solutions at TransPerfect where she helps clients create transformational impact with language, technology and business consulting solutions. She has extensive experience in clinical research, along with knowledge of digital marketing. Her extensive coaching background allows her to bring a unique perspective to patient recruitment and engagement. She is passionate about impacting the industry in meaningful ways and bringing life-changing treatments to patients who need them.