Engaging Patient Communities: A Pathway to Clinical Trial Success

Life Sciences, Clinical Trials, Patient Recruitment & Retention, Drug Discovery & Development,
  • Tuesday, April 16, 2024 | 11am EDT (NA) / 4pm BST (UK) / 5pm CEST (EU-Central)
  • 60 min

In this webinar, the expert speakers will focus on the critical role of patient communities in advancing clinical trials.

They will explore best practices for engaging with patient communities to enhance recruitment, retention and overall success of the trial. Based on case studies and interactive discussions, attendees will learn how to build trust, foster communication and address the unique needs of patient communities.

In a recent study, 91 percent of sites stated they did not have adequate staff to perform recruitment activities and 78 percent of sites indicated they did not have a clear recruitment plan.
With recruitment, retention and engagement being the linchpin of clinical trials, the speakers will discuss strategies to augment awareness of clinical trials within the broader public sphere, how to connect with patient communities and provide innovative approaches to engage with local communities.

Register for this webinar today to discover strategies for meaningful collaboration, which in turn can drive innovation and improve the clinical trial experience.

Speakers

Mapillar Dahn, MTS Sickle Cell Foundation, Inc.

Mapillar Dahn, CEO/Founder, MTS Sickle Cell Foundation, Inc.

Inspired by her three daughters who battle sickle cell disease (SCD), Mapillar Dahn founded MTS Sickle Cell Foundation, Inc., a non-profit organization, to bring awareness to SCD and provide support to families affected by SCD. Since its inception in 2015, she has built an engaged online presence of over 60,000 users from all over the world. MTS Sickle Cell Foundation supports patients and families through educational resources, financial assistance and events.

Message Presenter

Will Krugman, Director of Marketing & Patient Engagement, Clinical Research Associates, Inc.

Will Krugman, MBA, is the Director of Marketing and Patient Engagement at Clinical Research Associates, Inc., a large independent clinical trial site in Nashville, Tennessee. He brings more than a decade of professional marketing, communication and community engagement practices to CRA, which has helped the site grow its patient database, improve its brand recognition and build sustainable relationships with members of the Nashville community. He is looking forward to speaking about how sites, staff and site owners can leverage simple marketing tactics to improve patient communication, recruitment and retention. Will earned his MBA from Vanderbilt University’s Owen Graduate School of Management in 2020.
Message Presenter
Jenifer Ngo Waldrop, Black Women’s Health Imperative

Jenifer Ngo Waldrop, Executive Director of the Rare Disease Diversity Coalition, Black Women’s Health Imperative

Jenifer Ngo Waldrop joined the Black Women’s Health Imperative (BWHI) as Executive Director of the Rare Disease Diversity Coalition (RDDC) in October 2022. Jenifer is a values-driven leader who excels in facilitating multi-faceted, respect driven conversations that lead to better connections and mutual understanding. Before joining the leadership team of RDDC, she developed models and programs for diversity, equity, and inclusion (DEI) initiatives to support multiple business units with Fortune 500 companies and organizations in Asia, Canada, and the US. She excels when contributing her skills and abilities to award-winning organizations who have been recognized for their employer value proposition. Jenifer has consulted with hospital systems where she demonstrated impact and influence in driving the integration of DEI methodologies into business best practices and health equity programs.

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Prior to joining BWHI, Jenifer led initiatives at non-profit organizations such as the Arthritis Foundation and the American Cancer Society. At both organizations, she recruited local community members to participate in numerous health-related fundraising events and developed programs to target disparities and underrepresented groups. In addition to facilitating development and fundraising, Jenifer developed a reputation for successful coalition building. Under the banner of the Newark, NJ Cancer Coalition sponsored by the American Cancer Society, Jenifer helped to forge an alliance of multiple industries consisting of members from government employees, for-profit employees, church members and other health-related and community associations.

Jenifer received her undergraduate degree from Colby College and her Master of Human Resources Development from Villanova, focusing on Organizational Development. She is also a SHRM-Certified Professional. As the Professional Development Director of the National Association of Asian-American Professionals (NAAAP) of Colorado, Jenifer continues her outreach in society. Through this organization, she mentors formally and informally.

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Message Presenter
Leanne Woehlke, TransPerfect Life Sciences

Leanne Woehlke, Director Life Sciences Solutions, TransPerfect Life Sciences

Leanne Woehlke is a Director of Life Sciences Solutions at TransPerfect where she helps clients create transformational impact with language, technology and business consulting solutions. She has extensive experience in clinical research, along with knowledge of digital marketing. Her extensive coaching background allows her to bring a unique perspective to patient recruitment and engagement. She is passionate about impacting the industry in meaningful ways and bringing life-changing treatments to patients who need them.

Message Presenter

Who Should Attend?

This webinar will appeal to those involved in:

  • Clinical Operations
  • Research Development
  • Patient Solutions/Patient Experience
  • Advocacy
  • Science and Medical Affairs
  • Study/Project Management

What You Will Learn

The attendees will gain insights into:

  • Best practices for connecting with patient communities
  • How to build trust and create meaningful connections with patient communities
  • How to capture the patient voice for clinical trials

Xtalks Partner

TransPerfect Life Sciences

TransPerfect Life Sciences specializes in supporting global development and commercialization of drugs, treatments, and devices designed to improve and save lives. Our comprehensive solutions include eTMF and eClinical technologies, paper TMF migration, pharmacovigilance and safety solutions, translation and language services, and call center support. With offices in over 100 cities worldwide, TransPerfect is the ideal partner to ensure that your global launch makes a global impact. For more information, please visit our website at https://lifesciences.transperfect.com/.

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