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How Much Do You Know About Rare Diseases?

Posted on: February 27, 2018 in Quizzes & Polls | Life Science Quizzes & Polls
By: Vicki Pannu

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In honour of Rare Disease Day, check out this quiz and see how much you know about rare diseases and disorders

References
https://www.massbio.org/news/blog/didyouknow-rare-diseases-aren-t-as-rare-as-they-seem-140198
https://globalgenes.org/rare-diseases-facts-statistics/

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Privacy Policy

This privacy policy describes the privacy practices for www.Xtalks.com (hereafter referred to as “the Site”). Citizens of the UK and EU should refer to EU and UK – PRIVACY POLICY – HONEYCOMB WORLDWIDE INC. All users of the Site should read this privacy policy in conjunction with the Site’s TERMS OF USE. The Site is owned and operated by Honeycomb Worldwide Inc. (hereafter referred to as “Honeycomb”, “we”, “us” or “our”).

By using the Site, you agree to be bound by the Site’s Terms of Use and accept our Privacy Policy. Please note that our Privacy Policy and Terms of Use may be updated or modified at any time without notice and your continued use of the Site will indicate your acceptance of the revised terms.

This privacy notice applies solely to information collected by the Site. It will notify you of the following:

What personally identifiable information is collected from you through the Site, how it is used and with whom it may be shared
What choices are available to you regarding the use of your data
The security procedures in place to protect the misuse of your information
How you can correct any inaccuracies in the information

Information Collection and Use

Our Site uses cookies and/or other technologies. We may use cookies to help identify user preferences and estimate audience size. If you do not wish to receive cookies, you may change the settings on your Internet browser to alert you when a cookie is sent to your computer. You may then decide whether to accept it. Not accepting cookies may result in the reduced functionality of certain areas of the Site.

Our Site may also record clickstream data. Clickstream is a virtual breadcrumb trail that a user leaves behind while browsing. We may record paths you have taken (e.g. sections or stories clicked and the order in which it is done) and use this information to provide customized content. Clickstream data is not retained after your visit to our Site and does not identify you specifically.

When browsing the Site, we will collect your IP address along with information from networks collected before and after you visit the Site. Aggregated user data may be used to analyze audience demographics and user information. Aggregated user data may be shared with third parties.

We may collect personally identifiable information, which may include your name, job title, organization, email address, mailing address and telephone number. This information is primarily required to deliver our services to you. You may be required to provide personally identifiable information to:

Access content on the Site
Participate in, or contribute to, discussion forums, polls, quizzes and blogs
Register for newsletters, webinars and other virtual events
Setup your “My Profile” page that will provide you with one-click access when registering for virtual events and enable you to better customize your user experience

By entering your contact information on the Site and clicking “Join”, you agree to receive emails from us.

Third Party Use of Information

By entering your contact information to register for a webinar and clicking “Register”, you agree to permit us to share your contact information with third parties.

When you register for live or archived webinars, virtual events or other content (e.g. white papers) developed in conjunction with or by our partners, sponsors or other third party affiliates, we may share your contact information with these third parties. We may also share any additional information you supply during the event registration process or during your participation in an event (e.g. as polling data, messaging, score cards, surveys and other feedback) with the partners, sponsors or co-hosts of the event.

By entering your contact information in a poll or quiz, you agree that the associated information you supply may be shared with third parties by us.

By registering for webinars, other events or other content developed by or sponsored by our partners, you agree that your contact information may be shared with our partners as outlined above. Our partners have signed agreements binding them to abide by the applicable laws in their use of the information provided to them by us. Our partners are prohibited from sharing contact information provided by us with any third parties or agents outside their organization. For further clarification on their use of this information, you should also refer to the privacy policies of the partners associated with the content you wish to access.

Our partners may contact you after you have registered for access to the content or events on our Site that they have helped develop or have sponsored. By registering for access to this content, you agree to be contacted by our partners about relevant offers, services, initiatives and/or developments.

By participating in discussion forums on the Site, you understand that the information may be viewed and collected by others.

If you provide a testimonial or commentary about Honeycomb, its services or the services of its partners, you agree that we may use these testimonials or comments in our marketing literature both on and off the Site.

Opting Out

You may do any of the following at any time by contacting us via the email address or phone number provided on our Site:

Opt out of future contacts from us
See what data we have about you, if any
Change or correct any data we have about you
Amend or update your information via your “My Profile” page
Ask us to delete any data we have about you
Express any concern you have about our use of your data

Security

We take precautions to protect your information. When you submit sensitive information on our Site, your information is protected both online and offline. We use encryption to protect sensitive information transmitted online and we protect your information offline. Only our employees who need your information to perform a specific task (for example, customer service or marketing) are granted access to personally identifiable information. The computers and servers in which we store personally identifiable information are kept in a secure environment.

If you feel that we are not abiding by this privacy policy, please contact us immediately at 416- 977-6555 or [email protected]

EU and UK – PRIVACY POLICY – HONEYCOMB WORLDWIDE INC.

Welcome
Who we are
Our EU and UK Representatives
How to Contact Us
What personal data we collect
Data Accuracy
How We Collect Your Personal Data
Why We Use Your Personal Data
Your Rights
How to exercise your rights
How long we hold your personal data
Who do we share your personal data with?
Do we transfer personal data Overseas?
Third-party links
Marketing
How to withdraw consent
Do we use automated decision-making or profiling?
How We Keep Your Personal Data Secure
How to complain

This document is provided in a layered format, using the headings set out above. If you are reading this online, please click on the numbers to be referred to the relevant section.

Welcome

Welcome to Honeycomb Worldwide Inc.’s privacy notice, applicable to EEA and UK residents.

We appreciate the trust you place in us when sharing your personal data. We understand this is a big responsibility and the security of that data is very important to us. In this document, we will explain what information we collect, why and how we collect it, how we use it and how we protect your personal data.

We will also explain what rights you have regarding your personal data and how you can exercise those rights.

Please note that our website is not intended for children and we do not knowingly collect data relating to children.

Who we are

We are Honeycomb Worldwide Inc. (hereafter referred to as “Honeycomb”, “we”, “us” or “our”) and are the parent company for Xtalks.

We are the data controller for ourselves and Xtalks, which means that we determine what personal data is collected by each organisation, how this personal data is going to be used and how this personal data is protected.

Our EU and UK Representatives

We have appointed GRCI Law to act as our EU Representative. If you wish to exercise your rights under the EU General Data Protection Regulation (GDPR) or have any queries in relation to your rights or privacy matters generally please email [email protected] or post your request or query to Head of Data Privacy Manager Service, GRCI Law Limited, IT Governance Europe, Third Floor, The Boyne Tower, Bull Ring, Lagavooren, Drogheda, Co. Louth, A92 F682.

We have appointed GRCI Law Limited to act as our UK Representative. If you wish to exercise your rights under the UK General Data Protection Regulation (GDPR), or have any queries in relation to your rights or privacy matters generally please email our Representative at [email protected] or post your request or query to UK Representative, Unit 3, Clive Court, Bartholomew’s Walk, Cambridgeshire Business Park, Ely, Cambridgeshire, CB7 4EA, UK

When contacting our Representatives please ensure you include our company name in any correspondence.

How to Contact Us

In addition to contacting our EU Representative, you can contact us at:

Honeycomb Worldwide Inc.

Name or title of data privacy manager: Andrew Juurinen

Email address: [email protected]

Postal address: ATTN: Andrew Juurinen, 1235 Bay Street, Suite 802, Toronto, Ontario, M5R 3K4, Canada

or send us a message through our website at https://xtalks.com/contact/

What personal data we collect

We may collect, use, store and/or transfer different kinds of personal data about you. Personal data we collect includes:

Identity Data includes first name, last name, username or similar identifier, marital status, title, date of birth, gender, employer, and job title.
Contact Data includes billing address, address, email address and telephone numbers.
Resume Data includes application materials and answers to screener questions given to employers through the Xtalks Job Platform and answers to any questionnaires. This information may be associated with a profile.
Transaction Data includes details about payments and other details of products and services bought from us.
Technical Data includes internet protocol (IP) address, login data, browser type and version, time zone setting and location, browser plug-in types and versions, operating system and platform and other technology on the devices used to access our website.
Profile Data includes username and password, purchases or orders made, interests, preferences, feedback, and survey responses.
Images and personal appearance include copies of passports or drivers’ licences.

Usage Dataincludes information about how individuals use our website and services and online activity based on their interaction with us, our websites and applications for example searches, site visits browsing actions and patterns.
Marketing and Communications Data includes preferences in receiving marketing from us and our third parties and communication preferences.
Publicly Available Data includes identity and contact data from publicly available data sources such as Companies House and LinkedIn.

We do not collect any details about race or ethnicity, religious or philosophical beliefs, sex life, sexual orientation, political opinions, trade union membership, information about health or genetic and biometric data.

Data Accuracy

It is important that the personal data we hold about you is accurate and current. Please keep us informed if your personal data changes during your relationship with us.

How We Collect Your Personal Data

The data we collect depends on the context of your interactions with us and the choices that you make, including your privacy settings and the features that you use.

Most of the personal data that we collect about you will be information that you provide to us directly:

when you register for an account with us and use our services
when you register for a webinar, virtual event, or other content, host a webinar or take part in a webinar
when you attend training with us
when you fill in forms or correspond with us by post, phone, email or otherwise.
When you subscribe to our service or publications
when you take part in an event (e.g. as polling data, messaging, score cards, and other feedback)
where you provide necessary information, e.g., for verification and billing purposes.
when you take part in discussion boards or other forms of social media
when you request marketing material to be sent to you
when you enter a competition, promotion, or survey

We collect information through your behaviour and interactions with us:

when you interact with our website, we may automatically collect technical data about your equipment, browsing actions and patterns. We collect this personal data by using cookies, server logs and other similar technologies
from information from your device and actions taken on xtalks.com e.g., searches you run or webinars and jobs you click on
when you apply to jobs or for webinars, use screener or assessment questions or log in from third party sites
information we learn about you through our relationship and the way you interact with us

In some circumstances we may also receive information from:

regulatory bodies
other companies supplying services to us
data analytics to improve our website, products/services, marketing, customer relationships and experiences
publicly accessible social media networks such as Facebook, Instagram, LinkedIn, Google, and Twitter
providers of technical, payment and delivery services
publicly availably sources such as Companies House and LinkedIn

Click here for more information about our use of cookies and how to disable them.

Why We Use Your Personal Data

When we collect or otherwise process any personal information within the scope of European data protection laws, we do so where:

necessary to provide our services, fulfil a transaction or otherwise perform a contract with you or at your request prior to entering into a contract
it is in our legitimate interest to use personal information in such a way to ensure that we provide the our services in the best way that we can, protect the security of our systems, customers and website users and detect or prevent fraud, wherever we process your personal data for these purposes, we ensure that your interests, rights and freedoms are carefully considered
it is our legal obligation to use your personal information to comply with any legal obligations imposed upon us

Please contact us if you have any questions about how why we use your personal data.

Your Rights

You have several rights under data protection laws, the rights available to you depend on our reason for processing your information and are set out below:

Access –the right to request a copy of the personal data we hold on you. In most cases, this will be free of charge, however in some limited circumstances, for example, repeated requests for further copies, we may apply an administration fee.

Rectification of personal data – this right enables you to have any incomplete or inaccurate data we hold about you corrected, though we may need to verify the accuracy of the new data you provide to us.

Erasure of personal data – You can ask us to delete or remove your personal information in some circumstances such as where there is no good reason for us continuing to process it. We may not always be able to comply with your request of erasure for specific legal reasons which will be notified to you, job applicants who submit their personal info through the job application portal may also need to contact the potential Employer to have this data deleted or requested.

Restriction of processing personal data – this enables you to ask us to suspend the processing of your personal data in the following scenarios: (a) if you want us to establish the data’s accuracy; (b) where our use of the data is unlawful but you do not want us to erase it; (c) where you need us to hold the data even if we no longer require it as you need it to establish, exercise or defend legal claims; or (d) you have objected to our use of your data but we need to verify whether we have overriding legitimate grounds to use it.

Objection to processing of personal data – you can ask us to stop processing your personal information, and we will do so, if we are relying on legitimate interests to process your personal information, except if we can show compelling legal grounds for the processing; or if we are processing your personal information for direct marketing purposes.

Automated decision making – you have the right to ask for a decision to be made manually, where a decision is made using automated means and this harmfully affects you.

Portability – you have the right to have personal data we hold about you transferred securely to another service provider in electronic form.

How to exercise your rights

if you wish to exercise your rights or want further information about your rights please contact us.

In most circumstances you do not need to pay any charge for exercising your rights. We have 30 days to respond to you.

If you would like to unsubscribe from any email from us, you can also click on the ‘unsubscribe’ button at the bottom of the email or edit your subscription preferences here. It may take up to 7 days for this to take place.

How long we hold your personal data

We will keep your personal data for no longer than is necessary to fulfil the purposes we collected it for, including for the purposes of satisfying any legal, accounting, or reporting requirements.

Job Applicant’s data when making job application is uploaded to Xtalks.com servers, then emailed directly to the potential Employer’s email address to which the job applicant applied. After transmission of the data is complete, the personal data is deleted from our servers.

We keep basic information about our customers and website users (including Contact, Identity, and Transaction Data) for no more than two years after they cease being customers or website users. We keep Financial Data of our customers for no more than six years after they cease being customers.

Who do we share your personal data with?

We may from time to time share your personal data with the following organisations who also must keep your information confidential, safe, and secure:

potential Employers as part of a job application
service providers providing IT and system administration support and software services
payment Service providers such as PayPal Inc
third parties engaged in the course of the services we supply including webinar hosts
third party service providers to assist us with insight analytics, such as Google Analytics
third parties, employees, partners, agents, professionals, and subcontractors who supply products, services, and administrative support to us
law and law enforcement agencies, judicial bodies, credit reference agencies, fraud prevention agencies, governmental entities, tax authorities or government and regulatory bodies
where required as part of any proposed sale, reorganisation, transfer, financial arrangement, asset disposal or other transaction relating to our business and/or business assets
anyone else with your permission

(Please note this list is non-exhaustive and there may be other examples where we need to share with other parties to provide our services as effectively as we can).

Do we transfer personal data Overseas?

Where necessary to deliver our services, we will transfer personal information to countries outside the EEA. In circumstances where personal data is transferred outside the EEA, we will only do so:

where the transfer is to a country which has been assessed by the European Commission (or an equivalent UK body) as ensuring an adequate level of protection for personal data;
with your consent; or
where the transfer is compliant with the GDPR and other applicable laws.

Third-party links

Our website may include links to third-party websites, plug-ins, and applications. Clicking on those links or enabling those connections may allow third parties to collect or share data about you. We do not control these third-party websites and are not responsible for their privacy statements. When you leave our website, we encourage you to read the privacy notice of every website you visit.

Marketing

Our Company would like to send you information about products and services of ours that we think you might like.

You have the right at any time to stop us from contacting you for these purposes

please contact us If you no longer wish to be contacted for these purposes.

If you have opted out from our marketing communications, it is possible that your details may be recaptured through public sources in an unconnected marketing campaign. We will try to make sure this does not happen, but if it does, we are sorry, and we would ask that in those circumstances you opt out again. Where processing of data is based on your consent, you have the right to withdraw your consent to processing without affecting the lawfulness of processing based on consent before its withdrawal.

How to withdraw consent

You can withdraw consent at any time where we are relying on consent to process your personal data. However, this will not affect the lawfulness of any processing carried out before you withdraw your consent. If you withdraw your consent, we may not be able to supply certain products or services to you. We will tell you if this is the case at the time you withdraw your consent.

Do we use automated decision-making or profiling?

We do not use automated decision-making or profiling.

How We Keep Your Personal Data Secure

We have put in place appropriate security measures to prevent your personal data from being accidentally lost, used or accessed in an unauthorised way, altered, or disclosed. In addition, we limit access to your personal data to those employees, agents, contractors and other third parties who have a business need to know. They will only process your personal data on our instructions, and they are subject to a duty of confidentiality.

How to complain

You have the right to make a complaint at any time to the Information Commissioner’s Office (ICO), the UK supervisory authority for data protection issues (www.ico.org.uk) or if you wish to make a complaint to a different National Data Protection Authority please use this link to find the appropriate contact details https:// edpb.europa.eu/about-edpb/board/members_en

We would, however, appreciate the chance to deal with your concerns before you approach the ICO or another National Data Protection Authority so please contact us.

TERMS OF USE

This notice details the Terms of Use for use of the website at www.Xtalks.com (hereafter referred to as “the Site”). Users of the Site should read the Terms of Use in conjunction with the site’s Privacy Policy. The Site is owned and operated by Honeycomb Worldwide Inc. (hereafter referred to as “Honeycomb”, “we”, “us” or “our”).

By using the Site, you agree to be bound by the Site’s Terms of Use and accept our Privacy Policy. Please note that our Privacy Policy and Terms of Use may be updated or modified at any time without notice and your continued use of the Site will indicate your acceptance of the revised terms.

All rights to the content on the Site are reserved by Honeycomb. No part of the Site may be reproduced, stored in any retrieval system, or transmitted in any form – electronic, mechanical, photocopying, recording or otherwise – without prior consent from us. Such requests for consent should be forwarded to [email protected].

Limitation of Liability

While every care has been taken to ensure the data and information on the Site is accurate, we cannot accept, and hereby disclaim any liability to any party for loss or damage caused by errors or omissions resulting from negligence, accident or any other cause.

Further, neither the information on the Site nor the information provided during webinars or other events is business, legal or tax advice and should not be relied on as such.

Third Party Materials

Opinions and views expressed or implied on the Site are not necessarily those of Honeycomb and the company does not endorse any sponsors or advertisers, or their products or services, and accepts no responsibility for content provided by such parties.

The Site may include links to third party sites. We take no responsibility for the functionality of those links or the content posted on the third party sites to which you are redirected.

Intellectual Property

©2004-2021 Honeycomb Worldwide Inc.

All registered and unregistered trademarks on the Site are the sole property of their respective owners. Further, the content on the Site and provided during webinars and other events is subject to copyright, which is the property of its respective owners. We grant you a limited license to access and use the Site and its related content without reproducing elsewhere.

While presenters and sponsors retain IP rights over the content they present all webinars and videos produced by Xtalks are subject to Honeycomb’s copyright. For clarity, while sponsors and advertisers may deliver the same or similar content through other media channels (physical or online) it is expressly forbidden to replay or re-broadcast any Xtalks produced content on any other media, publishing or event industry website or platform without Honeycomb’s express written consent. Sponsors are hereby granted the permission to host the recordings of the webinars on their own website.

You agree that the words “Honeycomb Worldwide Inc.”, “Xtalks” or any variations thereof are trade names that are owned by Honeycomb, and any related marks are trademarks owned by Honeycomb. You specifically agree that you will never, in any way, use the words “Honeycomb”, “Xtalks” or any imitation or variant thereof as part of a trade name, company name, or firm name in a manner likely to cause customer confusion with Honeycomb’s services.

Indemnification

By using the Site, you accept to indemnify, defend and hold harmless Honeycomb, its directors, officers, employees and its affiliates from any claims, damages, liabilities and expenses, including legal fees, arising from your use of the Site and its related content, such as, but not limited to, hosted webinars and discussion forums. We reserve the right, at your expense, to assume the exclusive defense and control of any matter for which you are required to indemnify Honeycomb, and you agree to cooperate with our defense of these claims. You agree not to settle any matter without the prior consent of Honeycomb. We will use reasonable efforts to notify you of any such claim, action or proceeding upon becoming aware of it.

Minors

The Site is a business/industry professional website and is not targeted towards children or intended for use by children. Minors should not use the Site or register any information on the Site.

Unauthorized Use

When you register for access to the Site, or any elements of the Site such as webinars or discussion forums that may require additional or different registration criteria, you agree to only enter information about yourself that is both true and complete. You explicitly agree not to impersonate another person, such as one of our employees, hosts, editors or moderators. Similarly, you agree not to represent yourself as an employee or agent of any organization other than that which is true.

You agree not to post any information on the Site unless you have the legal right to post such content and by posting such content you are not infringing the legal rights of others. You agree that any content or comments you post on the Site will not be unlawful, threatening, abusive, libelous, defamatory, pornographic, or obscene.

You agree not to share unauthorized commercial communications on the Site and agree to adhere to all applicable anti-spam rules and regulations. You also agree not to collect any user content or information by any automated means.

Unauthorized Access

You will not share your account information with any other individual. You agree to keep confidential all account information that permit access to and enable use of the Site. You must notify us immediately of any breach of security or unauthorized use of your account. We will not be liable for any losses caused by any unauthorized use of your account.

Content and Contact Information

You are solely responsible for keeping your contact information current, accurate, complete and secure. We will not be held liable for your failure to do so. Further, we reserve the right to remove any content at any time.

Termination

We reserve the right, at any time, without notice and without reason, to cancel or terminate the account of any individual or refuse their current or future access. We may also terminate the account of any individual for violation of the Terms of Use. Upon termination, all rights granted to you will also terminate.

Access

Access to certain of the events, documents, articles or forums on the Site may be restricted. Registration does not guarantee your access to those items. This may be particularly true for certain webinars where the audience profile is defined by our partners. Webinar registrations should therefore be viewed as an application and not a guarantee of access to the content.

No Warranty

We do not warrant that the Site will be secure, error-free or function without disruption.

Controlling Law and Severability

The Terms of Use are governed by and construed in accordance with the laws of Ontario and the federal laws of Canada applicable therein. If for any reason a court of competent jurisdiction finds any provision, or portion thereof, to be unenforceable, the remainder of the Terms of Use shall continue to be in full force and effect.

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