Improving Access to Clinical Trials for Rare Disease Patients Through Registries
About this webinar
New medicines are made possible by participation in clinical trials and patient recruitment is often the rate limiting step in bringing new therapies to market. Research has shown that patients are likely to participate when they are aware of clinical trial opportunities and are empowered with knowledge to optimize their engagement experiences. In rare diseases, these problems are further amplified. In this session, learn how Medidata is improving access to, and optimizing experiences in, clinical trials through myMedidata.
In this webinar, participants will learn:
- Introducing registries as a tool for rare disease patients
- Using registries to help rare disease patients become empowered, educated and engaged regarding clinical trial opportunities
Who should attend
- Clinical Operations
- Data Management
- Biostatistics
- Regulatory Affairs
- Research and Development
- Therapeutic Area Heads
What you will learn
In this webinar, participants will learn:
- Introducing registries as a tool for rare disease patients
- Using registries to help rare disease patients become empowered, educated and engaged regarding clinical trial opportunities
Featured Speakers
Kelly McKee
Kelly McKee is the Senior Director of Patient Registries and Recruitment with 20 years of experience in clinical trial operations, patient recruitment and innovation. McKee is passionate about celebrating the role that clinical trial participants bring in making new medicines and vaccines possible and was named one of PharmaVoice’s 100 Most Inspiring Leaders in 2020, Centerwatch’s Top 20 Innovators of 2018 and PharmaTimes’ Clinical Researcher of the Year, Clinical Research Teams in 2012. She is a proven clinical trial leader and trailblazer in operationalizing global patient-focused solutions across organizations including innovations in clinical trial awareness, access and improvements in patient experiences.
Partner for this event
Medidata
Medidata, a Dassault Systèmes company, is leading the digital transformation of life sciences, creating hope for millions of patients by helping to generate the evidence and insights to help pharmaceutical, biotech, medical device and diagnostics companies, and academic researchers accelerate value, minimize risk, and optimize outcomes.
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