In this episode, Ayesha and the editorial team spoke with prominent cystic fibrosis and rare disease patient leader Gunnar Esiason to learn more about his advocacy work, including his work in clinical trials and developing patient-facing technologies. Gunnar has consulted on clinical trial development, a real-world evidence population health study and a cystic fibrosis-specific mental health and wellness screening tool.
He has been the face of fundraising efforts for the Boomer Esiason Foundation, which has raised more than $160 million for the fight against cystic fibrosis since he was diagnosed with the condition in 1993. He also has a successful blog and has co-hosted and hosted podcasts, with his most recent one called The State of Health with Gunnar Esiason, which has featured sitting US senators, governors and health industry leaders. Hear more about Gunnar’s work and his passion for patient advocacy and improving rare disease clinical research in this episode of the Xtalks Life Science podcast.
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