Building a Clinical Trials Website: How a Leading Sponsor Educates the Public, Engages Patients & Informs HCPs

Life Sciences, Clinical Trials,
  • Thursday, January 23, 2020

In its ongoing commitment to patients, Merck KGaA, Darmstadt, Germany, which operates its healthcare business as EMD Serono in the US and Canada, has launched a dedicated clinical trials website using the TrialScope Engage™ platform.

To ensure that the site’s content meets the needs of patients and the public, Merck worked closely with the Center for Information and Study on Clinical Research Participation (CISCRP). The website features answers to commonly asked questions, videos and personal accounts to allay patients’ fears.

In this webinar, a speaker from Merck will share why this became an organizational priority, its approach to the creation of the website and lessons learned along the way. A speaker from CISCRP will discuss how it obtained patient input and how that feedback guided content creation. Finally, a speaker from TrialScope will explain how its technology — syncing clinical trial data to the website and generating robust search functionality — helps patients find and enroll in relevant trials, and keep participants informed of study updates and results.

Speakers

Robert_Janiak

Robert Janiak, Head of Clinical Trial Transparency, Merck KGaA, Darmstadt, Germany

Robert Janiak leads the Clinical Trial Transparency group at Merck Healthcare KGaA, Darmstadt, Germany. His focus is on management of global clinical trial disclosure, responsible data sharing, lay language summary distribution and clinical document redaction. He is a clinical development leader with over 20 years of experience in global oncology clinical development, including extensive clinical development experience in Japan. He has successfully managed several global clinical programs and has been recognized with several awards.

Message Presenter
Jill McNair

Jill McNair, Senior Director, Health Communications Services, Center for Information & Study on Clinical Research Participation (CISCRP)

Jill McNair oversees a team dedicated to helping sponsor companies provide lay language summaries to study volunteers. She also provides oversight to the planning, creation and execution of CISCRP education and outreach programs; development and fundraising; marketing and public relations; and business development.

Message Presenter
Naor Chazan

Naor Chazan, CMO, TrialScope

As chief marketing officer at TrialScope, Naor Chazan believes that trial transparency is the best path to patient engagement. He is passionate about helping clinical trial sponsors create digital experiences for patients and caregivers that build trust, trial knowledge and health literacy.

Message Presenter

Who Should Attend?

This webinar will appeal to executives, directors, scientists, managers and others from pharma and biotech responsible for clinical trial transparency and access, including those in:

  • Patient engagement
  • Clinical trial recruitment
  • IT
  • Marketing/communications
  • Regulatory/legal
  • Research and development
  • Clinical operations
  • Project management
  • Clinical trial planning and optimization

What You Will Learn

Upon completion of this webinar, participants will be able to:

  • Allocate time and resources required to launch a clinical trials website
  • Follow best practices for patient-friendly website design and content
  • Understand how data automation keeps study information up to date

Xtalks Partners

Merck KGaA, Darmstadt, Germany

Merck KGaA, Darmstadt, Germany, a leading science and technology company, operates across healthcare, life science and performance materials. In the U.S. and Canada, Merck KGaA, Darmstadt,

Germany operates its healthcare business as EMD Serono. Around 56,000 employees work to make a positive difference to millions of people’s lives every day by creating more joyful and sustainable ways to live. From advancing gene editing technologies and discovering unique ways to treat the most challenging diseases to enabling the intelligence of devices – the company is everywhere. In 2018, Merck KGaA, Darmstadt, Germany, generated sales of € 14.8 billion in 66 countries.

Center for Information & Study on Clinical Research Participation (CISCRP)

The Center for Information and Study on Clinical Research Participation is a first-of-its-kind nonprofit organization dedicated to educating and informing the public, patients, medical/research communities, the media and policy makers about clinical research and the role each party plays in the process.

TrialScope

TrialScope is the global leader in clinical trial disclosure and transparency management technology, supporting 16 of the top 20 industry clinical trial sponsors worldwide. TrialScope provides proven solutions that optimize the efficiency of disclosure activities, maximize trial data transparency, and foster more informed, engaged patients through open research sharing.

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