Join this informative webinar to explore lupus solutions and real-world treatment impacts through a discussion on patient aspects and the role of technology in streamlining research efficiency. Lupus is a complex disease with diverse manifestations, limited treatment options and inequitable impact on the affected population. This makes research into patient experience, treatment patterns and long-term clinical outcomes particularly challenging.
High-quality real-world data (RWD) can enable researchers to assess the current disease burden and generate evidence on the impact of new and established treatments in a highly efficient way, including exploring new hypotheses and capturing long-term outcomes. “Ideal” sources of RWD for Lupus would include the following components:
- Demographic and socioeconomic data
- Deep clinical information on disease manifestations
- Health care utilization, including treatment information
- Long-term clinical outcomes, including patient-reported outcomes (PROs)
Join Alira Health’s Real World Solutions experts and external partners from FORWARD — the US national databank for rheumatic diseases — for a deep dive into Lupus RWD.
Speakers
Dr. Kaleb Michaud, Professor, Division of Rheumatology, Director, Rheumatology Fellowship Research Program, University of Nebraska Medical Center
As a lifelong patient, Dr. Kaleb Michaud’s experiences have powered his passion and dedication to improving rheumatology and patient outcomes. He serves as Director of Forward, The National Databank for Rheumatic Diseases, a long-term, open-cohort observational study with over 50,000 enrolled participants. He leads the University of Nebraska Medical Center RAIN clinical database and collaborates with VARA, RISE and other registries. A scholar in pharmacoepidemiology, health informatics and cost-effectiveness, Dr. Michaud prioritizes mentoring and volunteering to grow the next generation of Healers, Scientists and difference-makers.
Message Presenter
Dr. Patti Katz, Professor, Medicine, University of California San Francisco
Dr. Patricia Katz is currently Emeritus Professor of Medicine and Health Policy at UCSF. She has authored more than 300 publications, and has received grants from a variety of sources including the National Institutes of Health (NIH) , Department of Defense, and the Rheumatology Research Foundation (RRF). Her research has followed two main paths: measurement of patient-centered outcomes, and the impact of “lifestyle” factors such sleep, obesity, and physical inactivity on clinical and patient-centered outcomes. Dr. Katz is a past Editor-in-Chief of Arthritis Care & Research and the current co-Editor-in-Chief of ACR Open Rheumatology. Dr. Katz received the ARHP Distinguished Scholar Award in 1997, the STAR Award in 2005, the ARHP Presidential Award in 2003 and 2010, the ARHP Lifetime Achievement Award in 2015, and ACR Excellence in Investigative Mentoring Award in 2019.
Message Presenter
Frederico Calado, Vice President, Global Real-World Solutions, Alira Health
Frederico Calado is currently leading the Real-World Solutions team at Alira Health. His focus is to develop and deliver value-add data and evidence-based solutions for their customers, across the contiguous areas of clinical development, medical affairs, RWE and HEOR.
Fredirco’s experience includes: Head of RWE Innovation & Partnerships, Health of Data Policy Director, Real World Evidence (RWE) Director and Health Economics & Outcomes Research (HEOR) Director in both global and country positions. Before joining Novartis, he worked in access-related roles in pharma, consultancy and academia. Frederico holds a PharmD degree from the University of Lisbon with a post-graduation degree in epidemiology and a master’s degree in economic evaluation for health technology assessment from the University of York.
Message PresenterWho Should Attend?
This webinar will appeal to innovative professionals in the following fields and job titles:
- C-level executives
- Clinical operations
- Patient engagement
- Market access
- HEOR
- Medical affairs
What You Will Learn
Attendees will gain insights into:
- Key patient-relevant features that should be covered by RWD in lupus
- The potential of RWD to improve the understanding of the patient and caregiver experience/needs and accelerate clinical research into the development of new treatment options
- How technology can play a bigger role in enabling trial recruitment and reducing the data collection burden for patients, care teams and researchers
Xtalks Partner
Alira Health
Alira Health is a global healthcare firm whose mission is to humanize healthcare and life sciences in partnership with patients. From development to medical care, we complement the expertise of our Pharma, Biotech, and MedTech clients with a full spectrum of services across their entire solutions lifecycle, including clinical operations, real-world evidence, and patient-centric technology offerings.
Our integrated and multidisciplinary team of over 800 scientists, strategists, economists, clinicians, and biostatisticians collaborate across our North American, European, and Asian offices and advise 80% of the top 50 MedTech companies and 75% of the top 50 Pharma companies.
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