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Does Access to 100 Million Patients Lead to Patient-Led Research?

Does Access to 100 Million Patients Lead to Patient-Led Research?

How can greater data access increase patient enrollment and engagement, truly creating patient-led research? Turns out, in quite a few ways.

If identifying and including patients is one of the biggest hurdles of a clinical trial, what do you think access to 100 million patients would do?

Although it’s not the panacea for all patient recruitment challenges, having access to millions of patients offers an opportunity to provide study designers with the ability to transform clinical trials by focusing on the real-world needs of the patient population in a way unlike ever before.

Elligo Health Research recently partnered with global healthcare technology companies dedicated to data sharing to advance clinical research. This led to the question: How can greater data access increase patient enrollment and engagement, truly creating patient-led research? Turns out, in quite a few ways:

  • Building real-world-compatible trial design. Study designers can focus more on building patient-friendly protocols, investing time in understanding the lifestyle of the patient.
  • Empowering a more diverse patient population. As increasing diversity in clinical research becomes imperative, access to large amounts of data means patients can be identified in advance and site locations can be ready sooner to accommodate them.
  • Locating difficult-to-reach patients. More access to find patients means reaching more patients, putting them at the center of the research process.
  • Streamlining inclusion/exclusion. The more data accessed, the increased opportunity for feasibility.
  • Expedited timelines. The sheer scope of data scales up the opportunities to rapidly access even the strictest protocols for viability, ultimately saving time and preventing under-enrollment or failed trials.

By creating a holistic ecosystem between patients, physicians, and researchers, the patient is no longer at the end of a linear ecosystem; instead, they are at the very center, and all research circles around them. Access to a vast patient data resource affords all stakeholders the opportunity to be fully supported, and enhances and streamlines the entire clinical research process, leading to results that ultimately benefit more patients with successful outcomes.

Want to learn more? Read our white paper.

This article was created in collaboration with the sponsoring company and the Xtalks editorial team.